8/5/11
Still I Rise
8/4/11
Getting Mentally Prepared
It won't be long before I start another round of treatment to try and get rid of my Hepatitis C. As I've posted before I've gone through the treatment once already and didn't beat the virus. This time around they are adding a protease inhibiter to the standard Inteferon and Ribavirin. From what I understand the triple therapy is twice as hard as the course of treatment I went through the first time, and the first time was really super hard for me.
Before I started treatment the last time, I got myself all geared up and ready to beat the disease. I was super positive and all gung-ho. "I'm gonna beat this thing, just wait and see." Then after 48 weeks of increasingly good test results, bam, they weren't good enough and the virus started replicating again. I was so upset and even embarrased. Embarrased because of all the talk I did about how I was beating it and all.
This time I'm having a really hard time getting into the right frame of mind to make it through the 48 weeks. I know what it's like to get let down when it doesn't work. I keep telling myself that I really don't have an option. I've got to try it again. Still, there's a part of me that is doubtful. I wonder if I should really put myself through all that again. What if it doesn't work again this time?
I guess I will try and think of the treatment as a battle between the bad virus thingys and the good medicine thingys...The virus thingys having holed up in my liver and the medicine thingys trying to get in and destroy them. A bit simplistic I know but it worked for me the last time. When you're too sick and tired to get out of bed it's best to keep it simple in my opinion.
I was actually in bed thinking about all this and couldn't sleep, so I got up and started writing. I think now I've exhausted all my thoughts about the treatment. At least for tonight.
Enjoy Life...
Dead Letter And The Infinite Yes
Garden Of Exile
Toby Martin
8/2/11
5/1/11
A Dream Within A Dream
4/13/11
4/2/11
The Man Who Planted Trees
I saw an extraordinary film about the life of Elzeard Bouffier, a humble shepherd who turned a wilderness into a lush forest. In a lifetime spanning two World Wars, while madmen killed each other for worldly power, this individual quietly and anonymously brought his world back to life, planting one acorn at a time. He not only created natural beauty, but contributed to healing an entire town that had fallen into despair?one man, working gently, living day to day seeding love wherever he went.
Each of us has a forest we can plant to bring our world back to life. Our trees may not be spruces; they may be children, songs, art, ideas, massage, repairs, writing, or any other gift that comes to us and through us.
What impressed me most about Elzeard Bouffier was the humility with which he conducted his forestry ministry. He was silent most of the time, he did not seek acknowledgment and never asked anyone to follow him. He simply knew what he had to do and went about the business of doing it.
I met Scott and Helen Nearing, the famous couple who initiated the back-to-the-land movement in the 1930s. Although the Nearings had well-paying jobs and comfortable city lives, they moved to the mountains of Vermont, grew organic food, heated with wood, and nurtured their land. At the time, they were laughed at and criticized. Now they are considered pioneers and virtual saints. I asked Helen, “How do you feel now that so many are doing what you began? ”
“It’s wonderful, ” Helen answered, “but that’s not why we did it. We did what we had to because it was right for us. If no one else ever followed, it would have been just as right. ”
What is your forest? How can you bring your world back to life? Begin today, one acorn at a time.
This meditation is an excerpt from Alan Cohen's meditation book, "A Deep Breath of Life".
Where The Sidewalk Ends
4/1/11
3/28/11
A Second Chance
How many journal posts have I started by saying how long it has been since the last post? It's funny....but I'm going to have to do it again. It sure has been a long time. I have momentous news though and I thought I'd do a blog post.
My gastroenterologist is going to let me go back through the Interferon and Ribavirin treatment for my Hepatitis C. I came very close to getting rid of the virus when I went through the treatment the first time. However, if even one of the microorganisms is left it will quickly start to replicate again as mine did. This time through the treatment the doctors are adding a protease inhibitor called telaprevir. It's supposed to have a very high success rate and I'm feeling very, very hopeful. I feel the best psychologically right now that I've felt in a long time. I feel like I've been given a second chance and I have some motivation back. Now, as I look back, I realize that I've just been drifting through life not really caring about things. I knew I was dying and that idea consumed me.
Along with the constant thoughts about dying I have had a sense of shame about having this disease. I have felt that when people hear that I have Hep C, they think I must have been doing something shady or nasty to catch it. It is true that I could have been living with the virus since the 80's when I was into intraveneous drug use and shared needles. It's also just as possible I caught it by sharing razors with a lover I think might have been infected back in the 90's. Regardless of how I might have caught it, I have a second chance now of getting rid of it.
11/22/10
Full Moon In Gemini
It was a clear crisp night for this full moon. It really was pretty. I've been struggling with how to write about what I've been going through the past few months. I'm having a hard time dealing with this whole death thing. It really is more than just that. It's the fact that I'm so dissatisfied with things in my life and I stay so bored all the time. I will be okay and maintain a sense of balance for several weeks and then, Pow! I say "fuck it," get trashed, and try to kill myself. I believe deep down I'm thinking that I'm going to die anyway, why not just get it over with. I think I need a therapist!
I hope you are enjoying the photos and song lyrics and stuff that I've been posting. I may start writing some short stories on here or something. We'll see...
Enjoy Life!








