With The New Moon In Leo
Should I tell you all my past regrets? Should I make this a confession of some kind?
An Apperception Of I
In case you didn't know today was Eastern Orthodox Pascha (Easter). I got a call from my old priest about a week ago asking me if I'd like to come to the service. I told him I wasn't sure but I would think about it. When I woke up this morning it was one of the first thoughts I had. In the past week I've really been concentrating on building my spiritual strength. I think it is the only tool I have to make it through this process of death. Of course there are several aspects of spiritual strength. I have been worried about the correctness of my beliefs...I wish it could be so simple as going back to the Russian Orthodox Church. I miss it so bad, but I know in my heart that I can't go back.
The only way I think I'm going to be able to resolve this conflict is to incorporate all the beliefs I know in my heart to be true and just have my own religion....the religion of Jeff. This may sound strange but I have an altar of sorts in a corner of my bedroom where I meditate and pray. I have included parts of several religions. I have tapestries of Ganesha, Laskmi ,Sarasvati and Ardhanarishvara. I have pictures of Buddha and Bhaiṣajyaguru. There are also crystals...a bear claw...sage for cleansing.... In the past I've kept my christian icons seperate from my non-christian things but I've decided I need to bring them all together. In my process of getting ready to die, I have to come to some sort of conviction in what I believe. . and I believe parts of all of the religions...and I have to believe that that's okay...become firm in that...
When I meditate or pray I cleanse the area with sweet grass and sage then I burn Athonite style incense, pure frankincense blended with fragrant musky oils, hand-made by monks in Greece. It's hard to explain but the aroma of this incense has a dual effect on my senses. I not only smell it but I feel it as well. It is a calming, spiritual feeling. I burn beeswax candles under my icons and pictures to represent prayers and veneration. It also moves me when I play either Russian Orthodox church music or sacred chants of Shiva.
It is really hard to incorporate my Christian beliefs with my beliefs from other religions. The Christian Church is so exclusive. I still think there is a lot of wisdom in the teachings of the Orthodox Church.
Fr. Seraphim Rose wrote,
Orthodoxy is not merely a ritual, or belief, or a pattern of behavior, or anything else that a man may possess, thinking that he is thereby a Christian, and be spiritually dead; it is rather an elemental reality of power which transforms a man and gives him strength to live in the most difficult and tormenting conditions, and prepares him to depart with peace into eternal life.
Even though Father Seraphim Rose was talking about Orthodoxy...I want that strength of conviction and the transformative power that strong faith brings. I don't get that much traffic on my blog, but if you read this I'd love it if you commented.....
Enjoy Life!
It's pretty sad when you can't even write a journal post. I can't describe what I've been feeling. I was supposed to have started the latest course of treatment for my hepatitis c but for some reason the doctors are stalling and haven't told me anything. I feel as though I'm hanging between life and death in some sort of limbo. I am just drifting through my days like a breeze through time until the day I turn to dust. I am relatively empty without any desire to be filled with anything. What's the use if I'm dying? Day by day, walking toward my grave. Why care anymore? This letting go of everything...is it a normal process that you go through when you die? If it is, Am I feeling it prematurely, or is death closer than I think? I just don't know. To shake this feeling off would be extremely difficult and I'm not sure I have the reserve or energy required. Maybe I should just accept it and drift through the rest of my days empty. It doesn't feel much like any kind of ending that I would have wanted. But, here I am like this and I don't have the energy to be any other way.
O God, Who holdeth in Thy right hand all the ways of man's life: I thank Thee for all Thy visible and secret goods, for earthly life and for the heavenly joy of Thy future Kingdom. Pour forth richly Thy grace, in the future as well, on us who sing to The : Glory to Thee, O God, in ages!
I was born on earth as a feeble and helpless child. From that moment Thy love shines in all my ways and miraculously guides me into the light of eternity. For that my soul lauds Thee and hails Thee with all who know Thee:
"We're born alone, we live alone, we die alone. Only through our love and friendship can we create the illusion for the moment that we're not alone." Orson Welles
"The most terrible poverty is loneliness, and the feeling of being unloved." Mother Teresa of Calcutta
"Pray that your loneliness may spur you into finding something to live for, great enough to die for." Dag Hammarskjold
"The person that tries to live alone will not succeed as a human being. His heart withers if it does not answer another heart. His mind shrinks away if he hears only the echos of his own thoughts and finds no other inspiration." Pearl S. Buck
"For some people solitariness is an escape not from others but from themselves. For they see in the eyes of others only a reflection of themselves." Eric Hoffer
Okay, it's pretty bad when you start looking for quotes about loneliness. I'm feeling bored and lonely so I guess I'll do a journal post. There really hasn't been that much going on.
I'm kind of in a limbo state as far as the new treatment I'm going to be going through goes. The new treatment is so much harder than the last one, the doctor said we really have to cross our t's and dot our i's before we start it. Once you start it you can't quit. If you quit you can never have the treatment again. The body can only handle this particular protease inhibitor once. It's looking like December before I'll get to start. I have to tell you that with everything I've heard, I'm scared to death. I'm trying my best to get psyched up for it, but it's really difficult after having failed with the last treatment. The first three weeks were pure hell. After that it was like I was coming down with the flu for fourty-five weeks.
I had thought that I was going to have to get rid of Tank and Dozer (my two zebra finches) but all is well now and I get to keep them. I know it sounds silly but I love having them here with me. They're so fun to watch and I love hearing them ring their bells.
The weather today is just about perfect. It's about 79 degrees right now and tonight it will probably get down to around 60 degrees. You can't get any better than that. I really should be outside enjoying it. I wish I had someone that would go with me and motivate me. God, I want a cigarette. Sorry that just slipped out!
Okay, so I'm gonna get off here and do something....I don't know what....I'm enjoying an old Pink Floyd album so I might draw for awhile.
Enjoy Life!
"It is said that the Tao Te Ching can not be understood any more than you can understand a river. If you wish to experience the river you must jump in. Many things in the Tao Te Ching will confuse you.The confusion is not to be conquered. It does not result from a lack of knowledge. This confusion is a teacher that can teach you about yourself, your story, your people, your world and the still point of the universe to which we give the crude name - the Tao.
There are no footnotes of commentary here. These words of the Tao are to be hung like bells in our hearts and rung by the motions we make as we move through our daily lives. Any other sounds make it difficult to hear the bells.
The Tao is universal. It is not Chinese. Its is found in the quest of Christian mystics, native Americans, Zen monks, desert holy men, and indeed in every culture and age in the story of the earth. Before this story began and after it ends there is the Tao. It consists of stillness and silence and it will enter into any quiet heart."
From the preface of the Tolbert McCarroll translation.
"Love cannot be forced, love cannot be coaxed and teased. It comes out of heaven, unasked and unsought." Pearl S. Buck
"Many people lose the small joys in the hope for the big happiness." Pearl S Buck
"There are many ways of breaking a heart. Stories were full of hearts broken by love, but what really broke a heart was taking away its dream -- whatever that dream might be." Pearl S. Buck
"I feel no need for any other faith than my faith in the kindness of human beings. I am so absorbed in the wonder of earth and the life upon it that I cannot think of heaven and angels." Pearl S. Buck
"One faces the future with one's past." Pearl S. Buck
"Sorrow fully accepted brings its own gifts. For there is alchemy in sorrow. It can be transmitted into wisdom, which, if it does not bring joy, can yet bring happiness." Pearl S. Buck
"Every mistake has a halfway moment, a split second when it can be recalled and perhaps remedied." Pearl S. Buck
It won't be long before I start another round of treatment to try and get rid of my Hepatitis C. As I've posted before I've gone through the treatment once already and didn't beat the virus. This time around they are adding a protease inhibiter to the standard Inteferon and Ribavirin. From what I understand the triple therapy is twice as hard as the course of treatment I went through the first time, and the first time was really super hard for me.
Before I started treatment the last time, I got myself all geared up and ready to beat the disease. I was super positive and all gung-ho. "I'm gonna beat this thing, just wait and see." Then after 48 weeks of increasingly good test results, bam, they weren't good enough and the virus started replicating again. I was so upset and even embarrased. Embarrased because of all the talk I did about how I was beating it and all.
This time I'm having a really hard time getting into the right frame of mind to make it through the 48 weeks. I know what it's like to get let down when it doesn't work. I keep telling myself that I really don't have an option. I've got to try it again. Still, there's a part of me that is doubtful. I wonder if I should really put myself through all that again. What if it doesn't work again this time?
I guess I will try and think of the treatment as a battle between the bad virus thingys and the good medicine thingys...The virus thingys having holed up in my liver and the medicine thingys trying to get in and destroy them. A bit simplistic I know but it worked for me the last time. When you're too sick and tired to get out of bed it's best to keep it simple in my opinion.
I was actually in bed thinking about all this and couldn't sleep, so I got up and started writing. I think now I've exhausted all my thoughts about the treatment. At least for tonight.
Enjoy Life...
How many journal posts have I started by saying how long it has been since the last post? It's funny....but I'm going to have to do it again. It sure has been a long time. I have momentous news though and I thought I'd do a blog post.
My gastroenterologist is going to let me go back through the Interferon and Ribavirin treatment for my Hepatitis C. I came very close to getting rid of the virus when I went through the treatment the first time. However, if even one of the microorganisms is left it will quickly start to replicate again as mine did. This time through the treatment the doctors are adding a protease inhibitor called telaprevir. It's supposed to have a very high success rate and I'm feeling very, very hopeful. I feel the best psychologically right now that I've felt in a long time. I feel like I've been given a second chance and I have some motivation back. Now, as I look back, I realize that I've just been drifting through life not really caring about things. I knew I was dying and that idea consumed me.
Along with the constant thoughts about dying I have had a sense of shame about having this disease. I have felt that when people hear that I have Hep C, they think I must have been doing something shady or nasty to catch it. It is true that I could have been living with the virus since the 80's when I was into intraveneous drug use and shared needles. It's also just as possible I caught it by sharing razors with a lover I think might have been infected back in the 90's. Regardless of how I might have caught it, I have a second chance now of getting rid of it.